Description
To prepare for this Assignment:
Review this week’s Learning Resources, paying close attention to those related to the four ethical principles and the Tuskegee Syphilis Study.
Be sure to consider how the four ethical principles of autonomy, beneficence, non-maleficence, and justice can be applied to this historic case.
To complete this Assignment, write a 2- to 3-page paper that addresses the following:
Summarize the Tuskegee Syphilis Study.
Discuss how each of the four ethical principles can be applied to the case (autonomy, beneficence, non-maleficence, and justice). Provide specific examples.
Discuss some of the legal and ethical lessons that can be learned from the Syphilis Tuskegee Study.
Your written assignment must follow APA guidelines. Be sure to support your work with specific sources from this week’s Learning Resources and additional scholarly sources as appropriate.
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STANFORD RESEARCHERS EXPLORE LEGACY OF TUSKEGEE SYPHILIS STUDY TODAY – Document – Gale Academic OneFile Select
STANFORD RESEARCHERS EXPLORE LEGACY OF TUSKEGEE SYPHILIS
STUDY TODAY
Date: Jan. 6, 2017
From: States News Service
Publisher: States News Service
Document Type: Article
Length: 1,282 words
Full Text:
STANFORD, Calif. — The following information was released by Stanford University:
By Beth Duff-Brown
It’s been more than 40 years since the revelation of the Tuskegee syphilis study sent shockwaves across the country. The subsequent mistrust of
the medical community among African-American men appears to have spread far beyond the Deep South, where the infamous public health
project took place.
Go to the web site to view the video.
Directed by Nicole Feldman
Stanford scholars and Bridge Clinical Research team up to uncover the causes of health disparities between white and black men. They were
motivated by historical research on the role of Tuskegee shaping health behaviors.
Six hundred African-American men were chosen for the “Tuskegee Study of Untreated Syphilis in the Negro Male,” launched during the Great
Depression. They were told they had “bad blood,” and many underwent painful spinal taps and other medical procedures. Of those 600 men, 399
had syphilis.
Even after the U.S. Public Health Service in 1945 approved penicillin to treat the disease, the study that began in 1932 would continue until 1972
without the men being treated — all in the name of medical research.
Stanford sophomore biology major Javarcia Ivory remembers hearing this medical horror story growing up in neighboring Mississippi. He vowed to
become a doctor and help revive the lost trust in public health in the Deep South.
When Ivory learned about a Stanford-led research project in Oakland, CA–one that would dig deeper into this legacy of mistrust stemming from
Tuskegee–he jumped.
“As an African-American and someone who aspires to one day become a doctor, I just knew I had to get involved,” he said.
Lower life expectancy
“The [Tuskegee] study’s methods have become synonymous with exploitation and mistreatment by the medical community,” write Stanford Health
Policy’s Marcella Alsan and her colleague Marianne Wanamaker at the University of Tennessee.
The two have found that the disclosure of the study in 1972 is correlated with increases in medical mistrust and mortality among African-American
men. They published their findings in a working paper for the National Bureau of Economic Research last year.
Using publicly accessible data, the researchers estimated life expectancy at age 45 for black men fell by up to 1.4 years in response to the
disclosure, accounting for about 35 percent of the 1980 life-expectancy gap between black and white men.
Alsan and Wanamaker used data on medical trust, migration and health utilization from the General Social Survey and the National Health
Interview Survey, as well as morbidity and mortality data from the Centers for Disease Control and Prevention.
Their paper touched a nerve among some prominent African-Americans, some of whom praised the work as a model for understanding medical
mistrust today.
“The story that Alsan and Wanamaker uncovered is even deeper than the direct effects of the Tuskegee Study,” wrote Vann R. Newkirk II in The
Atlantic.
“Their research helps validate the anecdotal experiences of physicians, historians and public health workers in black communities and gives new
power to them,” Newkirk wrote. “These findings are also useful in framing health care debates and discussions of health disparities today.”
Health disparities run deep
African-American men today have the worst health outcomes of all major ethnic, racial and demographic groups in the United States. Life
expectancy for black men at age 45 is three years less than their white male peers, and five years less than for black women.
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STANFORD RESEARCHERS EXPLORE LEGACY OF TUSKEGEE SYPHILIS STUDY TODAY – Document – Gale Academic OneFile Select
In the years following the disclosure of the Tuskegee trials, medical researchers have repeatedly pointed to the U.S. Public Health Service
experiment as one reason African-Americans remain wary of mainstream medicine and health care providers.
“Mistrust may function as a tax on the price you pay to see a doctor,” said Alsan.
To further test this hypothesis beyond their data research, Alsan launched a pilot project in Oakland this summer to evaluate the willingness of
black men to seek preventive medical screenings.
Stanford”…sophomore”…Javarcia”…Ivory (left)
“…and”…Dr.”…Owen”…Garrick”…compare”…notes”…outside”…a”…clinic”…where”…volunteers”…receive”…medical”…checkups.”…Photo”…by”…Nicole
The Oakland Health Disparities Pilot Project partnered with Owen Garrick, president and COO of Bridge Clinical Research, an organization based in
Oakland that helps clinical researchers find patients from targeted ethnic groups.
Alsan and Garrick worked alongside students from Stanford and the University of California, Berkeley, as well as recent emergency medical
technician students from the Oakland community to help run the project.
“We believe that even if you remove all the obstacles — transportation, access to health care and insurance — if you don’t trust the provider, you
won’t follow their advice,” said Garrick, a physician whose mission is to get more people of color involved in clinical trials.
“But if you can push through this issue of mistrust, then you really begin to reap the benefits of the wealth of our health care system, and then take
advantage of the things that we as Americans have been afforded,” he said.
Oakland barbers in predominantly black neighborhoods partnered with the researchers and the barbershops served as recruitment sites. Uber
also donated rides to the clinic for screening services.
Some 200 men filled out a medical survey; of those, 60 then agreed to clinical care.
Chris Colter, a manager for Station 33 Barber Shop in downtown Oakland, was pleased to participate in the pilot.
“It feels good that we’re helping out the community and that we’re instrumental in helping black men with health issues,” said Colter.
The pilot results are encouraging, Alsan said, given the high number of those who took up the offer for medical screenings. The team is hoping to
scale up the research if they secure additional funding.
Ivory spent his summer in the Oakland barbershops urging patrons to fill out the surveys and get the free checkup.
“I was really surprised at how easily they opened up with me and how interested they were that I went to Stanford,” said Ivory, who intends to go
to medical school and return to rural Mississippi to practice medicine.
African-American men have a 70 percent higher risk of developing heart failure than white men, prompting Ivory’s desire to become a cardiologist.
“Working in the barbershops really gave me an in-depth understanding of how important diversity and inclusion in medicine are for some
American populations,” said Ivory. “Medical mistrust does not have to dissuade black men from seeking health care in contemporary America — but
it does. And this has galvanized my passion for wanting to become a doctor.”
A presidential apology
Herman Shaw was one of eight Tuskegee survivors invited to a White House ceremony in 1997, to meet President Bill Clinton, who formally
apologized for one of the most macabre clinical trials in American history.
The last of the Tuskegee survivors, Ernest Hendon, died in 2004 at the age of 96.
“The wounds that were inflicted upon us cannot be undone,” Shaw said at the White House ceremony, after being helped to the podium by Clinton.
“I’m saddened today to think of those who did not survive and whose families will forever live with the knowledge that their death and suffering
was preventable.”
The valedictorian of his 1922 high school class had wanted to go to college to study engineering, but his father insisted he stay back to run the
family farm. Shaw died in 1999 at the age of 97.
Two years earlier, at the White House ceremony, Shaw still found it in his heart to say it was never too late to “restore faith and trust.”
“In order for America to reach its full potential,” Shaw said, “we must truly be one America — black, red, white together — trusting each other, caring
for each other and never allowing the kind of tragedy which has happened to us in the Tuskegee study to ever happen again.”
Copyright: COPYRIGHT 2017 States News Service
Source Citation (MLA 9th Edition)
“STANFORD RESEARCHERS EXPLORE LEGACY OF TUSKEGEE SYPHILIS STUDY TODAY.” States News Service, 6 Jan. 2017. Gale Academic OneFile
Select, link.gale.com/apps/doc/A476741357/EAIM?u=minn4020&sid=bookmark-EAIM&xid=23b9ac81. Accessed 21 Jan. 2024.
Gale Document Number: GALE|A476741357
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KNOWLEDGE OF THE TUSKEGEE STUDY
AND ITS IMPACT ON THE WILLINGNESS
TO PARTICIPATE IN MEDICAL
RESEARCH STUDIES
Vickie L. Shavers, PhD, Charles F. Lynch, and Leon F. Burmeister
Baltimore, Maryland and Iowa City, Iowa
The under-representation of racial/ethnic minorities among medical research participants has
recently resulted in mandates for their inclusion by the National Institutes of Health (NIH).
Therefore, there is a need to determine how history, attitudes, cultural beliefs, social issues, and
investigator behavior affect minority enrollment in medical research studies.
From January 1998 to March 1999, 179 African-American and white residents of the Detroit
Primary Metropolitan Statistical Area (PMSA) participated in a mail and telephone survey
designed to examine impediments to African-American participation in medical research studies.
Chi-square tests were performed to assess differences between the study groups using the Survey
Data Analysis Program (SUDAAN).
Eighty-one percent of African Americans and 28% of whites had knowledge of the Tuskegee
Study (p =
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